Medical OET · Test 04
Test 04 - Part C - Extract 1
Cystic fibrosis is a condition that causes mucus to be thicker and stickier than it should be. Dr. Tadida Hossain specializes in cystic fibrosis treatment
Level: C1 · 69 sentences
Transcript
- Cystic fibrosis is a condition that causes mucus to be thicker and stickier than it should be.
- Dr. Tadida Hossain specializes in cystic fibrosis treatment
- and is here to share her thoughts on caring for people with the condition.
- Tadida, can you tell us a bit more about patients who suffer from cystic fibrosis?
- Absolutely.
- Sufferers tend to carry two to five times as much salt in their bodies as those without the condition,
- so you can see why their mucus is thicker than average.
- Treatment for these patients is usually quite time-consuming and repetitive.
- Patients are often required to stay in hospital for long stretches
- and as the symptoms of the condition begin to present very early on in the patient's life,
- many of my patients are young people
- and so we tend to see lots of patients with cystic fibrosis finding these hospital visits frustrating.
- In fact, throughout the UK,
- about 80% of patients with cystic fibrosis who are hospitalized
- report feeling at least minimal levels of depression.
- How about young patients who aren't currently hospitalized?
- What can be challenging about their treatment?
- Well, patients can be required to take around 30 pills a day to keep cystic fibrosis under control.
- So it's understandable that teenagers and young people
- who just want to be free and independent might resent this ordeal
- if they think they can get away with it.
- One of the most difficult things we have to contend with is the fact that
- if patients stop taking their medication or doing their daily breathing treatments,
- their condition won't immediately worsen.
- Instead, it will gradually become more severe
- until they contract a serious infection which puts their lives at risk.
- So what approaches do you use when treating patients with cystic fibrosis?
- Well, we've found distraction therapy to be extremely useful.
- We're incredibly lucky to have received a donation of a number of virtual reality headsets
- following their success in a number of treatment trials.
- We use the virtual reality headsets to transport the patient to outdoor settings,
- often corresponding to the activities they're required to do with us.
- When they complete breathing exercises on a stationary bike, for example,
- the VR headsets display a virtual outdoor bike ride.
- Our patients find it helpful to pretend to be somewhere else during treatment,
- and it's often easier for us to administer breathing treatments to patients using these headsets,
- as they're more relaxed when they're not focused on the actuality of the test.
- So what sorts of changes have you seen in your patients as a result of these methods?
- One of my patients, a 24-year-old man with cystic fibrosis
- who was in hospital waiting for a lung transplant,
- well, he found treatment very difficult at first.
- He was preoccupied by his need for a transplant and frustrated by feelings of powerlessness.
- He would often resist treatment.
- We started using the virtual reality systems with him as soon as we got them,
- and it took a while for him to get on board.
- But when he did, it was like someone had breathed new life into him.
- Not only did he stop hindering his treatment, he actually began to look forward to it.
- He's even started helping us to think about other ways we can improve the experiences of our patients,
- like improving social interaction.
- Ah... yes, I understand that there are difficulties involved in patient communication.
- Hmm, we're looking into the possibility of instant messaging functions between patients
- and even virtual games that they can play against each other.
- Unfortunately, patients with cystic fibrosis have to be kept apart to avoid cross infection.
- It's just one more cross to bear for our patients that they can't talk to those going through the same thing.
- Our patients get plenty of interaction with myself and the rest of the staff,
- but we'd like to make sure they have access to a network of fellow sufferers too, for support and advice.
- I see.
- That all sounds quite futuristic.
- Are there any other advances on the horizon for the treatment of cystic fibrosis?
- Well, there's a new drug that's been in the news recently.
- It's a combination of lumacaftor and ivacaftor.
- You might know it by the brand name Orkambi.
- The drug works by improving the level of water and salt in the body,
- thereby reducing the thick mucus that causes illness and respiratory issues in those with cystic fibrosis.
- Even more exciting and futuristic, though, is the possibility of gene therapy,
- where the genetic mutation that causes cystic fibrosis in individuals is replaced with a healthy gene.
- This would effectively cure those with the condition
- and significantly extend the lives of thousands of people
- and remove the need for lengthy stays in hospital.